We work in collaboration with world-class researchers to advance our knowledge and provide the evidence-base to underpin our work and improve outcomes of children and families.
By indicating my consent and signing this form, I grant permission for the following general research-related activities that have been approved by the Hear and Say Research and Ethical Advisory Committee:
Access to my child’s medical, speech, language and hearing data that are documented in my child’s file.
Data sharing of my child’s results between projects.
Data sharing with First Voice, a national and global alliance of which Hear and Say is a member.
In doing so, I understand that:
No identifying information regarding my child or myself will be divulged; that any data collected will not be published or presented as to reveal our identity; and our privacy will be maintained at all times.
Our participation is completely voluntary and that I may terminate our involvement in the studies at any time, without this affecting my child’s ongoing enrolment at the Hear and Say.
Although the purpose of the research projects is to improve the quality of services for children with hearing impairment, our involvement in the research may not result in any direct benefit to my child.
Separate consent will be sought from me for inclusion in any research projects requiring active participation by me and/or my child.
I have the opportunity to raise any particular concerns relevant to the participation of my child and/or myself in research and to request project updates.