We work in collaboration with world-class researchers to advance our knowledge and provide the evidence-base to underpin our work and improve outcomes of our adult clients, children and families.
By indicating my consent and signing this form, I grant permission for the following general research-related activities that have been approved by the Hear and Say Research and Ethical Advisory Committee:
Access to my/my child’s medical, speech, language and hearing data that are documented in my/my child’s file.
Data sharing of my/my child’s results between projects.
Data sharing with First Voice, a national and global alliance of which Hear and Say is a member.
In doing so, I understand that:
No identifying information regarding my child or myself will be divulged; that any data collected will not be published or presented as to reveal my/our identity; and my/our privacy will be maintained at all times.
My/our participation is completely voluntary and that I may terminate my/our involvement in the studies at any time, without this affecting my/my child’s ongoing enrolment at Hear and Say.
Although the purpose of the research projects is to improve the quality of services for adults and children with hearing impairment, our involvement in the research may not result in any direct benefit to myself or my child.
Separate consent will be sought from me for inclusion in any research projects requiring active participation by me and/or my child.
I have the opportunity to raise any particular concerns relevant to the participation of my child and/or myself in research and to request project updates.